Thalassaemia International Federation (TIF) – Sickle-cell Project
The Thalassaemia International Federation (TIF) is a global, nongovernmental, patient-oriented organisation working in official collaboration with the World Health Organisation (WHO). Its main mission is the protection of the rights of patients with haemoglobin disorders, mainly thalassaemia and Sickle-cell Disease (SCD), for access to quality health care. In the context of its expanded educational programme in 2010-2012, TIF has focused its activities on SCD with the valuable support of the A. G. Leventis Foundation through an operational grant. TIF has incorporated in its educational programme, including seminars, workshops, conferences, and delegation visits in Europe and globally, the subject of SCD by promoting and expanding awareness on prevention and management of medical complications in the paediatric population and other groups. In the last two years, TIF has arranged a number of delegation visits and workshops around the world and has focused on strengthening patient/parent support groups globally and on developing networks with existing SCD associations to include African countries also.
Grants given:
2011, 2012, 2013, 2014, 2015, 2016, 2017, 2018, 2019, 2022
